Nutritional supplement management program among thalassaemia patients: a project of pharmacist managed care services | [Abstract Book on International Conference on Food and Applied Sciences (ICFAS-23) 3-5 August 23 • 2023]

Author(s):

1. A. Syeda: Department of Pharmacy Practice, Faculty of Pharmacy, Hamdard University, Karachi; Department of Haemoglobinopathies, Karachi, Pakistan

2. A. Qidwai: Department of Haemoglobinopathies, Karachi, Pakistan

3. S. Khan: Department of Pharmacy Services & Education, AMTFHelping Blood Disorders, Karachi, Pakistan

4. M. Mansoor: Department of Pharmacy Services & Education, AMTFHelping Blood Disorders, Karachi, Pakistan

5. A. Kidwai: CMB Solutions, USA

6. S. A. Khaliq: Department of Pharmacy Practice, Faculty of Pharmacy, Hamdard University, Karachi, Pakistan

7. W. Khalil: Department of Molecular Medicine, AMTF- Helping Blood Disorders, Karachi, Pakistan

8. M. Sayeed: Department of Haemoglobinopathies, Karachi, Pakistan

9. S. Sheikh: Department of Pharmacy Services & Education, AMTFHelping Blood Disorders, Karachi, Pakistan

Abstract:

Thalassaemia or Cooley's Anaemia is one of the haemoglobinopathies that is hereditary in its nature affects the hemoglobin formation in the children with the disease hence result in severely low level of hemoglobin that costs the life if left un-treated. The disease involves multiple organs by the passage of time; hence,resulting in becoming a syndrome. The most common associated comorbidities are stunt growth, cardiomyopathy, hepatospleenomegaly, osteoporosis, pericarditis and psychological disorders. Along with these, nutritional deficiencies in patients with thalassemia are very common which causes altered puberty and immunity as well as reduced bone mineral acquisition. Despite the encouragement of balanced and full of nourishment food intake among these patients, it is observed that compliance with daily dietary requirement through food sources is not possible among these patients since most of them belong to an underprivileged class of society. Keeping an eye on the problem, the pharmacist(s) practitioners in a managed care pharmacy services at Karachi, as a primary care providers, planned to incorporate the nutritional supplement (milk supplement) in their medication regimen, endorsed by the consultant haemoglobinopathies. This hypothesis was tested by determining the positive effect of nutritional milks / formula milk on the overall health including BMI , quality of life, immunity of patients with ß- thalassemia. The main objective(s) of the study is: To develop a protocol for the dispensing nutritional supplement at the premises making the practice evidence base. To analyze the effect of nutritional supplement (milk) on BMI, the quality of life and immunity of patients with ß- thalassemia major. The study is conducted at AMTF-helping blood disorders, Karachi through the pharmacists of its department of pharmacy services to evaluate the effect of Nutritional milk in transfusion dependent thalassemia patients. The study includes ßThalassemia major patients between the age of 8months - 10 years. 58 patients were selected for the study on the basis of their nutritional status. A pre and post therapy nutritional assessment of all recruited patients was assessed by measuring their weight, height , BMI, fatigue, frequency of infections. Patients were also questioned regarding their quality of life. All children were enrolled for 3 months initially to find out the outcome of the Nutrition milk supplement on BMI(Height/weight) and on the general health quality. The Obtained data was analyzed using SPSSto find the result parameters The study has proved the efficacy of the nutritional supplement under planned care program. It also has established a regimen for the administration or dispensing of nutritional supplement from the pharmacy which was undefined previously. Hence, enforcing the role of managed care pharmacists as primary care providers in a healthcare set up.

Page(s): 323-323

DOI: DOI not available

Published: Journal: Abstract Book on International Conference on Food and Applied Sciences (ICFAS-23) 3-5 August 23, Volume: 0, Issue: 0, Year: 2023

Keywords:

hemoglobin , Thalassaemia patients , Nutritional supplement

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