Exploring Caregiver Burden of Thalassemia Major Patients | [Proceedings of the Pakistan Academy of Sciences: B. Life and Environmental Sciences • 2024]

Author(s):

1. Humaira Yasmeen: Department of Microbiology and Molecular Genetics, The Women University,Multan, Punjab,Pakistan : Institute of Microbiology and Molecular Genetics, University of the Punjab, Quaid-e-Azam Campus,Lahore, Punjab,Pakistan

2. Hubza Ruatt Khan: Department of Microbiology and Molecular Genetics, The Women University,Multan, Punjab,Pakistan

3. Shahida Hasnain: Department of Microbiology and Molecular Genetics, The Women University, Multan, Punjab, Pakistan; Institute of Microbiology and Molecular Genetics, University of the Punjab, Quaid-e-Azam Campus, Lahore, Punjab, Pakistan

Abstract:

Thalassemia requires lifelong therapy that continuously strains patients, their families, and the local health system. This study was designed to analyse the challenges faced by carers and the efect they have on their social, psychological, and personal lives. Two hundred parents (100 cases and 100 controls) were recruited. In addition to socioeconomic status and concerns, feelings about children and their state of depression were also recorded by the PHQ-9 instrument. Statistically significant correlations were found which showed that parents are exposed to trauma at a very early age which limits their ability to become efectual individuals. Therefore, training and counselling must be worked out with extended family members for whom the health care body should also play its part in alleviating their suferings. Overall, this study emphasized the significance of considering caregiver worries regarding improving the well-being of children.

Page(s): 207-215

DOI: 10.53560/PPASB(61-2)941

Published: Journal: Proceedings of the Pakistan Academy of Sciences: B. Life and Environmental Sciences, Volume: 61, Issue: 2, Year: 2024

Keywords:

Thalassemia , Depression , Genetic counselling , PHQ9 , Extended Family Screening

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